Supporting Families Receiving a Diagnosis of Down Syndrome

The purpose of this interactive tutorial is to provide current knowledge about Down syndrome, as well as the communication tools to adequately support families and prospective parents at the point of the initial diagnosis of Down syndrome at birth or in utero. This program is designed for obstetricians, pediatricians, family practitioners, geneticists, or related medical practitioners learning about Down syndrome and the key elements of providing a diagnosis to help communicate more effectively with patients. The tutorial provides this information in three formats: 1) Brief 'information points' on key elements of Down syndrome; 2) Videos that model physician behavior; 3) Interactive questions and response; and 4) Post-test at the end. There are additional resources within the tutorial, including detailed resource documents, annotated bibliographies of key research studies, as well as 'Life Glimpses' of children and adults with Down syndrome from the perspective of their families. Each of the Resource Documents is printable as a PDF file. A one time user registration is required. There is no fee.